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Without those who
have and are helping this foundation, we would not be able to get the
medical treatment needed for PT, nor would there be the much needed
money for research.
So in recognition of
those who have and are helping this foundation, we dedicate this
page to them.
Thank you ALL for
your love and contributions ....
- Joni Jordon
for allowing us to post her professional pictures on our site
to help visitors get acquainted with Little PT.
- Mark Hoffman, CTP,
President
Sports Leisure Vacations
9521-H-Folsom Blvd.
Sacramento, CA
for contributing to the funding of "The Miracle Journey"
to New York, to help us keep the appointment with Dr. Alfred
Slonim.
- North Shore University Medical
Center
Long Island, New York
and Dr. Alfred Slonim
for establishing a Pompe Disease Center under the direction of Dr.
Slonim, a pediatric endocrinologist and one of the world's
foremost authorities on Pompe's Disease. The Center will serve as a global facility
dedicated to the clinical care, diet, rehabilitation, and education of Pompe
patients. It will be a center of excellence and resource for hospitals and
physicians worldwide in the diagnosis and treatment of patients with Pompe's.
Dr. Slonim will be one of the primary recipients of a grant from our Miracle Journey Pompe Foundation.
- Mr. Fred Lempsky...owner
Happy Daze RVs
1199 El Camino Ave.
Sacramento, CA
who donated the motor home for our first Miracle Journey to St. Louis
- Janice Sommerville and Karen Lord-Nixon
for the gift and contact with Dr. Michael Luchein who confirmed my concerns concerning PT unusual disposition
before rushing to Kaiser seeking urgent care.
- Umbertino Family (Chris, Merci, Al)
for all their support in calling to secure financial help while on the Miracle Journey to St. Louis.
- Annie Stanley and Bill McGoldrick
for driving the
Happy Daze motor home to St. Louis and back.
- Rev. Freda Smith, my pastor and the "wind beneath my wings"
for her relentless support and encouragement, and for keeping an all night "watch" when PT
was first admitted to ICU at Sutter Memorial Hospital, even though she
herself was not well.
- Tom Palmer
who will be driving with Bill McGoldrick to New York for the
appointment with Dr. Alfred Slomin.
- My immediate family and friends, Cathedral of Promise (my home church
family), the Universal Fellowship of Metropolitan Community Churches across
the world
for their prayers and support and love.
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